February 19, 2018

How We Help Our Son Live with Autism

A lot of people ask me what all goes into having a son with autism. What do we do to help him navigate this world? This is different from family to family. The needs of people with autism can vary greatly, so our steps for support, treatment, or intervention can vary as well. For us, the main goal is to try and get Brandon to a point where he can either live independently one day, or be able to communicate how people are treating him should he need care after we are gone. It can be unsettling to think about, but my greatest fear is that after my husband and I are gone, who is going to make sure he is living a safe and happy life? 

I could talk for days about how autism affects not only Brandon's life, but everyone in my family as well.  I could go on and on about all of the little things we do on a daily basis.  However, this post is to share some of the steps we are currently taking to try and help our six-year-old son, Brandon, grow as a person:

Applied Behavioral Analysis (ABA) Therapy
Brandon has ABA therapy in our home three days per week. This is a private therapy, which is partially covered by insurance. We are very fortunate to have therapists who truly love Brandon, are professionals, and are very good at what they do.

Autism Service Dog
Brandon’s Autism Service Dog, Bingo, is a godsend. Bingo does three main things for Brandon. He can track him, should Brandon ever elope and leave our home, school, etc. Brandon can be tethered to Bingo, allowing him to be free of the death grip of my hand, or his special needs stroller. Bingo can also disrupt Brandon’s behavior and is a comfort to him. We spent a lot of time, money, and effort to have a legitimate (amazing) Service Dog for Brandon. Bingo is everything we thought he would be, and more! My last 10 blog posts have had something to do with Bingo, so if you would like to learn more about his and Brandon’s relationship, just check out my recent posts.

Speech Therapy
Brandon’s speech therapy sessions are 100% covered by the public school system. His speech therapist is a friend of mine, and she is one of the most amazing people I know. She is yet another therapist who would walk to the ends of the earth for him.

Occupational Therapy
Occupational therapy is also covered by the school. She along with his speech therapist, provide and services within his classroom. I don’t know his OT as well as our ST, but she comes recommended, and is very sweet!

Clinical Trial
Brandon is in a clinical trial for a medication that treats autism directly. More specifically, it replaces essential amino acids that many people with autism are missing. We were initially in a double blind study, but now we know he is receiving the medication. 

Comprehensive Development Classroom (CDC)
Brandon is in a Comprehensive Development Classroom in the public school system. He goes to a general education classroom to spend time with and learn from his typically developing peers. He often seems like he is unaware of what is going on around him, but he is much more observant than he appears to be. I know that a lot of special needs families have not had a great experience in a public school system. I have a unique scenario. I am a teacher, and Brandon attends the school where I teach, so I have the luxury of being able to check in and communicate with his teachers more regularly than I could if I did not work there. I decided to become a teacher before I knew my son had special  needs, so God’s plan for us is unfolding beautifully there.

Home Sensory Room
We have turned one of the rooms in our house into a home sensory room. My husband gave up his office, and hasn’t regretted it for a second. In this room Brandon has a swing anchored into the ceiling, a bubble tube, and several other things to meet sensory and calming needs. You can read more about his sensory room here.

Special Needs Dance Class
Brandon has been a part of a special needs dance class for a few years now. His dance teacher is certified in Autism Movement Therapy. No matter how many meltdowns he has had at dance, including one where he bit one of the teachers leaving a mark for weeks, they have always welcomed him with open arms. Starting dance class when he was younger was one of the ways we were able to teach him to wait his turn. Like many six-year-olds, he is not perfect at the skill, but having to sit and wait his turn for the dance floor every week helped us get to a point where he has the stamina to wait for longer periods of time. This seems like a minor thing, but imagine waiting in line for a ride for for food and having an extremely strong child melting down on the floor and screaming and crying because he doesn’t understand why you are preventing him from doing something he wants to do. Waiting is an important skill, and one that many children with autism severely struggle with. 

Special Needs Baseball League
Brandon is in a Miracle League. Our town has a Miracle Field, which is a beautiful and adaptive field and playground where special needs children can play baseball. As hard as it can be for us, we want to expose Brandon to new things. He does not have the same childhood of a typically developing little boy, so it literally brings me to tears when people put forth time, money, and effort to make sure that children like mine can have experiences they deserve.

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